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Myeloma On The High Plains


A Need To Purge
(Maybe I need a vacation) Twenty-one months since my CAR T cell procedure, and my cancer numbers are holding steady. The monoclonal peak...
Sep 184 min read


On Permission
I’m a recovering over-achiever. Hustler. Striver. But if you’ve been reading my columns for a while, you probably already gathered that....
Sep 154 min read


Bucked Off
I still do not feel 100% following a turn with pneumonia but as Gene Autry, the Singing Cowboy once sang, “I’m back in the saddle again”....
Aug 264 min read


On Travel
A handful of months after receiving my MS diagnosis in 2014, I boarded an international flight that deposited me in Istanbul, Turkey to...
Jul 294 min read


Detour
This month is like none before. About three weeks ago, I started to have some profoundly serious fatigue and lack of motivation. I was...
Jul 231 min read


On Outdoor Activity
Ask anyone in Wyoming and they’ll tell you that our summer weather and access to the outdoors makes enduring the brutal winters worth it....
Jun 244 min read


About Yesterday
Month 18 post Car T Cell protocol and my blood numbers are holding steady. Other than the routine monthly shots to increase my ANC...
Jun 244 min read


Today – Tomorrow
I go in for my monthly blood draw on Monday at 11:00 am and, as usual, I am a bit nervous about what will be revealed. 17 months post CAR...
May 224 min read


On Retirement
I’m nearing one full orbit of the sun since stepping down from a top leadership position at the theatre company that I founded twelve...
May 203 min read


On Running
In the months after my MS diagnosis, riddled with the WebMD-derived fear of a wholly dependent, disabled future, I ran. A lot. I embarked...
Apr 254 min read


Just Don’t Know
Sixteen months post Car T and gratefully not much has changed since the last post. Numbers are holding steady regarding the monoclonal...
Apr 224 min read


15 Months/Tons
It has been almost fifteen full months since my CAR T cell procedure. December 2023 seems like a long time ago. Again, I am reminded that...
Mar 244 min read


On Conversation
In an exciting and terrifying turn of events, I have journeyed into the realm of publishing. A recent artist residency allowed me the...
Mar 244 min read


On Relapses, Retreats, and Returns
It’s been one year since my health took its latest turn. Perhaps it was a relapse. Perhaps a pseudo-flare. Perhaps the label does not...
Feb 244 min read


No What!
Forest Service Sign seen on a hiking trail: Warning – Extreme Hazard – No Water, No Shade, No Cell Service HMMM? This past month I...
Feb 203 min read


???
Not sure where this is all going, so let us begin here: Welcome to the start of the second decade. I was diagnosed with Multiple Myeloma...
Jan 214 min read


The Trip
“…. This is the worst/best trip, I’ve ever been on” -- Beach Boys, Sloop John B Happy Holidays to all who visit this site. May the joys...
Dec 21, 20244 min read


Gobble Gobble
Post Car T cell update at 11 months: Hard to believe that it has been 11 months since my Car T cell procedure. At times it seems as if it...
Nov 26, 20243 min read


Just Livin’
OK first things first - A 10-month post Car T cell update: The latest blood draw shows no evidence of a monoclonal peak which has always...
Oct 24, 20243 min read


11 Holes?
How in heavens name does one recover and pick up the pieces of what was your life after you hear those words “you have cancer”? That is...
Sep 24, 20243 min read
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