

On Running
In the months after my MS diagnosis, riddled with the WebMD-derived fear of a wholly dependent, disabled future, I ran. A lot. I embarked...

Anne Mason
5 days ago
49 views


Just Don’t Know
Sixteen months post Car T and gratefully not much has changed since the last post. Numbers are holding steady regarding the monoclonal...

Mark Pajak
Apr 22
59 views


15 Months/Tons
It has been almost fifteen full months since my CAR T cell procedure. December 2023 seems like a long time ago. Again, I am reminded that...

Mark Pajak
Mar 24
90 views


On Conversation
In an exciting and terrifying turn of events, I have journeyed into the realm of publishing. A recent artist residency allowed me the...

Anne Mason
Mar 24
42 views


On Relapses, Retreats, and Returns
It’s been one year since my health took its latest turn. Perhaps it was a relapse. Perhaps a pseudo-flare. Perhaps the label does not...

Anne Mason
Feb 24
73 views


No What!
Forest Service Sign seen on a hiking trail: Warning – Extreme Hazard – No Water, No Shade, No Cell Service HMMM? This past month I...

Mark Pajak
Feb 20
64 views


???
Not sure where this is all going, so let us begin here: Welcome to the start of the second decade. I was diagnosed with Multiple Myeloma...

Mark Pajak
Jan 21
113 views


The Trip
“…. This is the worst/best trip, I’ve ever been on” -- Beach Boys, Sloop John B Happy Holidays to all who visit this site. May the joys...

Mark Pajak
Dec 21, 2024
98 views


Gobble Gobble
Post Car T cell update at 11 months: Hard to believe that it has been 11 months since my Car T cell procedure. At times it seems as if it...

Mark Pajak
Nov 26, 2024
89 views


Just Livin’
OK first things first - A 10-month post Car T cell update: The latest blood draw shows no evidence of a monoclonal peak which has always...

Mark Pajak
Oct 24, 2024
89 views


11 Holes?
How in heavens name does one recover and pick up the pieces of what was your life after you hear those words “you have cancer”? That is...

Mark Pajak
Sep 24, 2024
94 views


To Fish Or Not To Fish
I am not an angler. In fact, the last time I wetted a line so to speak was…. Well, I cannot remember. It was well before I was diagnosed...

Mark Pajak
Aug 26, 2024
80 views


Dream On
“I have learned from experience that the greater part of our happiness or misery depends upon our disposition and not upon our...

Mark Pajak
Jul 23, 2024
99 views


Better
Happy June! What a month – warmer mornings and evenings begin to become the routine. The start of summer. Sitting outside on the porch,...

Mark Pajak
Jun 24, 2024
123 views


It is not about more.
First an update: It has been almost 150 days since I received my reconfigured T-cells and according to the most recent blood draw...

Mark Pajak
May 22, 2024
190 views


Here we go!
Day 90 arrived. Three months after I got my reconfigured T-Cells, a PET/CT scan was ordered to evaluate my condition. The results of the...

Mark Pajak
Apr 18, 2024
162 views


Not Quite
By the time this is posted, I will be on about Day 85 post Car T Cell introduction/re-introduction. Day 90 is a big day because a blood...

Mark Pajak
Mar 22, 2024
115 views


On Advocacy - In Honor of MS Awareness Month
I incurred a minor relapse. The statement is as blunt and disruptive as the experience. MS relapses have no finesse or tact. There is not...

Anne Mason
Mar 15, 2024
95 views


In Progress – Part Two
My previous post (January) included the experiences and thoughts regarding the first 14 days of a Car T cell protocol. This post deals...

Mark Pajak
Feb 21, 2024
154 views


On Studies and Tests
Growing up, I was an excellent student. I studied diligently, invested time in homework, and came to class prepared. A+ report cards were...

Anne Mason
Jan 23, 2024
109 views