top of page
Myeloma On The High Plains


To Fish Or Not To Fish
I am not an angler. In fact, the last time I wetted a line so to speak was…. Well, I cannot remember. It was well before I was diagnosed...
Aug 26, 20244 min read


Dream On
“I have learned from experience that the greater part of our happiness or misery depends upon our disposition and not upon our...
Jul 23, 20244 min read


Better
Happy June! What a month – warmer mornings and evenings begin to become the routine. The start of summer. Sitting outside on the porch,...
Jun 24, 20243 min read


It is not about more.
First an update:Â It has been almost 150 days since I received my reconfigured T-cells and according to the most recent blood draw...
May 22, 20243 min read


Here we go!
Day 90 arrived. Three months after I got my reconfigured T-Cells, a PET/CT scan was ordered to evaluate my condition. The results of the...
Apr 18, 20243 min read


Not Quite
By the time this is posted, I will be on about Day 85 post Car T Cell introduction/re-introduction. Day 90 is a big day because a blood...
Mar 22, 20243 min read


On Advocacy - In Honor of MS Awareness Month
I incurred a minor relapse. The statement is as blunt and disruptive as the experience. MS relapses have no finesse or tact. There is not...
Mar 15, 20244 min read


In Progress – Part Two
My previous post (January) included the experiences and thoughts regarding the first 14 days of a Car T cell protocol. This post deals...
Feb 21, 20244 min read


On Studies and Tests
Growing up, I was an excellent student. I studied diligently, invested time in homework, and came to class prepared. A+ report cards were...
Jan 23, 20244 min read


In Progress
Well, the good news is that I have made it past Day 14, which in a Car T Cell protocol is a benchmark day. Research/History of the...
Jan 22, 20244 min read


The Wait
Happy Holidays to all who happen upon this post. May this Holiday Season bring you joy and peacefulness. In a little less than two weeks...
Dec 18, 20233 min read


On The Gift of Visibility
I opened my mailbox the other day to find a small package containing a handmade card and a light paperback:Â Single Handedly: Learning to...
Dec 14, 20234 min read


GIANTS
Happy Thanksgiving? What, with cancer? OK, as promised here is an update on my CAR T cell process. I am proceeding forward with the Car T...
Nov 21, 20234 min read


Mashed Potatoes
Well, October finds me preparing for Car T cell therapy. I am scheduled to have my T-Cells harvested in early November. Once harvested,...
Oct 20, 20233 min read


On Ringing Silence
Whenever crafting a performance, I always mine for the moments of silence - the reverent pauses that allow for the impact of the...
Oct 11, 20234 min read


Operating Small
It is just about Fall. As a personal update, we are working towards a Car T cell therapy protocol for the treatment of my Multiple...
Sep 18, 20233 min read


On Pins and Needles
I hope I have not kept you waiting in anticipation for this month’s column, dear reader. It comes to you late in order to accommodate a...
Sep 9, 20234 min read


Overwhelmed?
So, this is how it is for me: No matter how much I try to accept my fate, I still struggle with these facts: I have cancer/multiple...
Aug 21, 20234 min read


On Silver Linings and Golden Repairs
I celebrated a birthday this month. Not a monumental one by any means, but another full orbit on this planet nonetheless. Just like with...
Jul 21, 20233 min read


Why? Because.
I want to let you know that I so appreciate, respect, and empathize with your struggles, your worries, your good days and your not so...
Jul 20, 20234 min read
bottom of page